Health Data Journey Mapping

The Health Data Journey Mapping working group aims to capture how patients experience data gaps, information barriers, and system-level harms across their healthcare journeys, identifying pain points that impede safety, equity, and efficiency while also highlighting positive elements that can be scaled or replicated. Conducted through interviews that center the patient perspective, this work seeks to represent the voices of individuals from rural, urban, and remote settings, including Indigenous peoples and other equity-deserving populations, who have historically faced data invisibility or systemic exclusion.